Ex-Médium Umbandista: Meu Testemunho – Ivani Greppi.

Our Spiritual Quest

Ivani Greppi – Meu testemunho: Ex-médium Umbandista

Ivani Greppi

“No demais, irmãos meus, fortalecei-vos no Senhor e na força do seu poder. Revesti-vos de toda armadura de Deus, para que possais estar firmes contra as astutas ciladas do diabo” (Efésios 6:10-11).

PREFÁCIO

“O meu povo foi destruído, por falta de conhecimento” (Oséias 4:6).

Vinte e um anos atrás, um pastor missionário do Brasil visitou a Gráfica Pyramid que pertencia aos meus pais em Kissimmee, Flórida. Deus usou esse evento casual—uma simples encomenda de cartão de visitas—para nos libertar de gerações de práticas ocultas. Este é um resumo do que minha familia e eu passamos durante décadas de enganos por Satanás através da prática do espiritismo.

Meus pais, irmã, e eu nascemos no Brasil. Nossos…

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The Exorcism of Laura Constantino, Sister of the late Famous Ghost Hunter, Mark Constantino

Dana, this is such a powerful testimony. God bless you and Laura Maxwell’s ministry. May Laura Constantino’s testimony and deliverance from the bondage of the occult through the powerful Name of Jesus Christ help many be set free and come to salvation in our only Lord and Savior ❤️

Spiritual Realities

~Article written by Dana Emanuel~

Exorcism/deliverance after involvement in Paranormal investigation/s, which led to Demonic Harassment And Deaths.

SEE VIDEO HERE, OF OUR EXCLUSIVE INTERVIEW WITH SISTER AND BROTHER OF LATE FAMOUS GHOST HUNTER, MARK CONSTANTINO!! >>>>>>

https://youtu.be/XmUNi-7rP_g

On July 14th 2018, After seeing my video “The Great Paranormal Deceptions”, on my good friend, Laura Maxwell’s YouTube channel, Laura Constantino contacted Laura and myself regarding demonic activity and torment she was having in her home.

Her brother, Mark Constantino, of the famous TV show, “Ghost Adventures”, died in tragic circumstances, (double murder-suicide) on 9/22/15 at the age of 53.

Laura’s brother, Mark Constantino, and wife, Debbie Constantino, of the famous TV show, “Ghost Adventures”, died in tragic circumstances, (double murder-suicide) on 9/22/15.

Mark and Debbie Constantino, of “Ghost Adventures” TV Show, Featured on the Travel Channel.

How Laura’s personal nightmare began

On the show, Laura C…

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GIVE ME YOUR TIRED, YOUR POOR—EXCEPT…

As an immigrant—a legal immigrant—of the United States, the polarizing debates regarding the approaching caravan (or invasion) of approximately 7,000 migrants are perplexing, frustrating, and alarming to say the least.

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Looking through the lens of an immigrant, whose ancestors were all immigrants from Europe to America or Brazil, I cannot support this “tolerant” idea that thousands of people can just step over our borders and call America home.

Is it heartbreaking to see the desperate faces of most people who are involved in this pilgrimage? Yes, it is heart-wrenching. But does their plight and suffering justify breaking the law? Are all seeking asylum, or just hoping for a better life?

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But how repugnant it is to watch those who wave flags of the very country they are fleeing from, demand entry here as if they are entitled to do so. Never mind chanting against our government, threatening their way in with rocks in fists.

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No. This is not “the wretched refuse” Lady Liberty is lifting her “lamp beside the golden door” for.

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How is it possible though, for an immigrant like myself not be supportive of the majority of these poor people who only want a better life for themselves and their children?

Because it is not legal. And it is unfair to millions of people paying their dues and waiting in line to legally immigrate to the United States.

Every single one of my ancestors paid a great price for the privilege (not their right) of becoming an immigrant with the dream of having a better life. None broke through borders. None broke laws of the land to gain entry.

Although my parents, sister and I arrived in the United States from Brazil in 1968, my father’s maternal grandmother had been a legal immigrant from Portugal, living in Massachusetts since 1909.

Her daughter, my father’s mother, was born in Taunton, Massachusetts in 1911. At the age of six, she returned to Portugal with her parents. Through a very convoluted story, my great-grandmother returned to the U.S. alone, leaving her husband and two daughters behind in Portugal.

In 1928, my American born grandmother immigrated to Brazil. It was not until almost fifty years later, in 1966, that she returned to her country of birth, reuniting with her mother in Massachusetts. Even though she never lost her American citizenship, she still had to go through legal channels to return to the United States.

As far as my father, whose mother was an American born citizen, he too had to wait years before being granted a visa for himself and his family. Not only that, he could only enter this country with a guaranteed work contract, and a Letter of Support from his grandmother. Still, this process took years.

And, we thank God every day for this blessing to not only be legal immigrants in the best country in the world but also to be proudly nationalized United States citizens living the Great American Dream.

While searching online for my great-grandmother’s immigration information, I found her records on Ellis Island Record Search.

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My great-grandmother Rita Marques arrived in New York on August 2, 1909, at the age of sixteen. Her widowed mother was fifty-five. Her two sisters were eighteen and fourteen. A seven-year-old nephew also accompanied the four women. (See Index No. 10: Marques)

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They arrived on the S. S. Venezia (Fabre). And once going through the immigration inspections, they were registered under the “Record of Aliens Held for Special Inquiry.” Cause of Detention: L.P.C. (Liable to become a Public Charge).

Why?

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Because the Immigration Act of 1882 stated the following: “Immigrants who were unable to take care of themselves without becoming a public charge were unsuitable for American citizenship and therefore denied their entry. In addition to LPC, the act initiated a fifty-cent head tax which would be used for bureaucratic processes. The act also denied entry of convicts.”

Furthermore, because my great-great grandmother was older, she classified under “Conditions for Denial: Individuals who have physical or mental ailments along with pregnant women are most likely to be proposed as a public charge. Immigrants who were found with physical or mental ailments were prospective for exclusion. Their ailments were seen to affect their ability to obtain employment and thus qualified them as a public charge.”

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My great-grandmother loved to tell us the story of how the immigration officials tested her mother for the ability to work by watching her perform calisthenics, and run back and forth in the Great Hall.

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“Conditions for Denial” also included: “Unmarried pregnant women seeking to migrate into the United States were presumed a public charge on account of their condition. These women were excluded from entry and were barred from arriving into the United States. It is noted that their condition presumed them as a public charge because no one would employ them and thus the government would initiate care for them. In addition, childrearing amongst immigrant women is also presumptive causes of public charge. Although support for children was legal, undocumented women were denied legal citizenship due to the public assistance that their children received. In these cases, and those of physical and mental ailments would render an obligation to the government, however, the government sought no obligation in this manner. Immigrants who arrived with only twenty-five to forty dollars and with no source of employment were deemed liable to become a public charge. Immigrants were investigated through means of competent evidence. Competent evidence includes the following: Health, family assets, financial status, education, skills, and age.”

“Generally, those immigrants who were approved spent from two to five hours at Ellis Island. Arrivals were asked 29 questions including name, occupation, and the amount of money carried. It was important to the American government the new arrivals could support themselves and have money to get started. The average the government wanted the immigrants to have was between 18 and 25 dollars ($600 in 2015 adjusted for inflation). Those with visible health problems or diseases were sent home or held in the island’s hospital facilities for long periods of time. More than 3,000 would-be immigrants died on Ellis Island while being held in the hospital facilities. Some unskilled workers were rejected because they were considered likely to become a public charge.”

“About 2% were denied admission to the U.S. and sent back to their countries of origin for reasons such as having a chronic contagious disease, criminal background, or insanity. Ellis Island was sometimes known as “The Island of Tears” or “Heartbreak Island” because of the 2% who were not admitted after the long transatlantic voyage. The Kissing Post is a wooden column outside the Registry Room, where new arrivals were greeted by their relatives and friends, typically with tears, hugs, and kisses.”

A twenty-five-year-old stowaway male and a nineteen-year-old female traveling with a nine-year-old boy were deported four days after being held along with my great-grandmother and family.

My great-grandmother and her family were held for “Special Inquiry” for two days. They were granted entry only when a family member in Massachusetts was contacted, and financially vouched for them.

Yes, Lady Liberty declared with “silent lips”: “Give me your tired, your poor, your huddled masses yearning to breathe free”—except those liable to become public charge.

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In “The New Colossus” poem by Emma Lazarus, she wrote: “Keep, ancient lands, your storied pomp!”

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History cannot be revised to fit our current narrative or political views.

“A nation that cannot control its borders is not a nation.”
― Ronald Reagan

Immigrants Ellis Island

Liable to become a Public Charge

Immigration Act of 1882

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Many thanks for taking time to read or even share the above post. For similar posts and more about myself and friends, please see the below links! God bless you! Ivani Greppi.

LINKS FOR IVANI GREPPI:

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‘… write the vision; make it clear.’ Habakkuk 2:2
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Black Magic (Witchcraft Curses/Spells) Exposed

Jesus Truth Deliverance

Is Magic Real?

We seen what looks like magic carried out on TV when magicians perform extraordinary feats. I dismiss most of it as a sleight of hand (thought I believe in some cases real familiar spirits are involved in their tricks). But here I am not going to discuss the type of “magic” you seen on TV for entertainment purposes, but instead real, genuine magic. Yes, real supernatural magic actually exists. Magicians are mentioned in scripture and scriptures identifies at least some of them as genuine. In Acts 8:9-12 there is Simon the Magician. In Exodus 7-8 (Cr. 2 Timothy 3:8) Pharaoh had magicians (Jannes and Jambres) that performed miracles. Babylon also had magicians (Daniel 1:20; 2:2, 27; 4:7, 9; 5:11). The Antichrist will be attended by diabolic signs and magical wonders (2 Thessalonians 2:9-12; Revelation 13:13-18). Magic plays a part in Satan’s world-wide rebellion against the living God.

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Halloween Article by Ex Spiritualist Laura Maxwell – UK’s Good News Newspaper.

Our Spiritual Quest

https://www.goodnews-paper.org.uk/welcome.htm

Since 2008, I’ve been asked to share through papers, magazines, on tv or radio about my reflections on Halloween, due to my background in new age and spiritualism. It’s always an honour to be asked to contribute. Good News just featured my article in their October 2018 edition.

I remember reading copies of Good News years ago! The editor told me that the paper is widely distributed across the UK, including within our prisons. I was thrilled to hear this!

https://www.goodnews-paper.org.uk/welcome.htm

https://www.goodnews-paper.org.uk/welcome.htm

https://www.goodnews-paper.org.uk/welcome.htm

Good News Newspaper Facebook Link:

ABOUT GOOD NEWS

EVANGELISTIC NEWSPAPER:

Good News is a contemporary outreach newspaper used by churches and missions to take the good news about Jesus Christ into communities across the UK.

Good News is designed to appeal to those who would normally buy a tabloid newspaper, e.g. Daily Mail, Daily Express, Daily Mirror, The Sun, or read a free paper like The Metro. Every issue contains…

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EX-MÃE DE SANTO BAINA-TESTEMUNHO DE IVONE SILVA

Ex-Mãe de Santo Baiana-Testemunho de Ivone Silva

Ivone Santos

Testemunho fortissimo de Ivone Silva, mãe de santo, conhecida como Mãe Baiana do Brasil. Era rica, famosa, e consultava com elites e artistas famosos como Sylvester Stallone e Gloria Estefan nos Estados Unidos e por outras partes do mundo. Deixou tudo quando Jesus Cristo revelou para ela, que tudo que fazia era com poder de Satanás. Depois de sua libertação, perdeu todas coisas materiais, mais ganhou sua vida eterna em Cristo Jesus para honra e gloria do Pai Eterno que morreu na cruz por nossos pecados.

Powerful Testimony by Ivone Silva, previously known as Mãe Baiana do Brasil (Baiana Mother of Brazil). “A Mãe-de-santo is a priestess of Umbanda, Candomblé and Quimbanda, the Afro-Brazilian religions. In Portuguese this translates to “mother of [the] saint[s]”, which is an adaption of the Yoruba language word iyalorishá, a title given to priest women in African religions. Iyá means mother, and the contraction l’Orishá means “of Orishá“. As a product of the syncretism, the word Orishá(elevated or ancestral spirit) was adapted into Portuguese as saint.”

She was famous worldwide. Many of the elite in Hollywood like Sylvester Stallone, Gloria Estefan paid large amounts for her spiritual services. During a flight to Miami, an evangelical Christian passenger, approached her and witnessed to her. Ivone renounced her prior service to Satan, and gave her life to Jesus Christ, after almost committing suicide.

Ivone Silva states in this video, that all the material wealth Satan gave her was taken away. But she praises God for her salvation in Jesus Christ and gives Him all the Honor, Glory, and Praise for setting her free from satanic bondage of practicing the occult.

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Many thanks for taking time to read or even share the above post. For similar posts and more about myself and friends, please see the below links! God bless you! Ivani Greppi.

LINKS FOR IVANI GREPPI:

Blog 
YouTube Channel
Facebook

 ‘… write the vision; make it clear.’ Habakkuk 2:2
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My Experiences With Sleep Paralysis Demonic Attacks And The Spiritual War We Are All In: By Jamaal Williams

“I will both lay me down in peace, and sleep: for thou, Lord, only makest me dwell in safety.” Psalms 4:8

Jesus Truth Deliverance

Jesus Truth Deliverance

What is Sleep Paralysis?

tumblr_o7cl5wWSHV1rpxkmvo1_1280.gifMany of you reading this probably have experienced it at least once in your lifetime or know someone who has experienced it. You wake up suddenly from sleep and you try to move but can’t no matter how much you exert yourself. You may manage to slightly move your toes or some other body part but it is a struggle and you still can’t move your entire body. This can go on for a few seconds or minutes but at times it can feel like an eternity. During an episode you may perceive an evil, malicious presence. You may feel utter dread. You may also have actually seen a shadow person or a shadow person wearing a hat or some other evil, demonic looking entity. You may have experienced some entity sitting on your chest or had an episode accompanied by an entity doing sexual things to…

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Seeking Personal Prophecies from Today’s Prophets by Camilla Rosa Eriksen.

Our Spiritual Quest

Camilla Rosa Eriksen wrote an article recently in Exposing The Darkness. and kindly gave me permission to share here.

‘It is so very tempting to seek answers from the spirit realm about our personal future life – especially when the past and present is painful and we need comfort and direction.
There is so much comfort in being told that “soon your blessing will come” and the future looks bright and “your waiting is over”. Wow.. you are going to be a pastor’s wife or a CEO of a successful company or have 2 children or own that house by the lake you always dreamed about!?

Wait. I have to warn you. Stop seeking prophetic words in churches for your personal life.
It seems a tempting alternative to mediums, clairvoyants, and “spiritual counseling” which we know are dangerous and wrong. But what is happening in the charismatic movement today is for…

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THE TEMPTATION OF JESUS AND SPIRITUAL WARFARE: BY MARK HUNNEMANN

The Temptation of Jesus and Spiritual Warfare
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Mark tells us that the Holy Spirit ‘drove’ Jesus into the wilderness (same word used when Jesus drove out demons). Perhaps this was to be seen as last of preparatory episodes before public ministry began in earnest. Once He was ordained and anointed for His public ministry, the Spirit leads the Lord Jesus as the Warrior King to march into an all-out assault on enemy occupied territory. This was holy war of the highest and holiest order—against unholiness and utter depravity. It was the devil who trembled and every demon in the world was probably in attendance.
1Then Jesus was led up by the Spirit into the wilderness to be tempted by the devil. 2And after fasting forty days and forty nights, he was hungry. 3And the tempter came and said to him, “If you are the Son of God, command these stones to become loaves of bread.” 4But he answered, “It is written, “‘Man shall not live by bread alone, but by every word that comes from the mouth of God.’” 5Then the devil took him to the holy city and set him on the pinnacle of the temple 6and said to him, “If you are the Son of God, throw yourself down, for it is written, “‘He will command his angels concerning you,’ and
“‘On their hands they will bear you up, lest you strike your foot against a stone.’”
7Jesus said to him, “Again it is written, ‘You shall not put the Lord your God to the test.’” 8Again, the devil took him to a very high mountain and showed him all the kingdoms of the world and their glory. 9And he said to him, “All these I will give you, if you will fall down and worship me.” 10Then Jesus said to him, “Be gone, Satan! For it is written,
“‘You shall worship the Lord your God and him only shall you serve.’” 11Then the devil left him, and behold, angels came and were ministering to him. (Matthew 4:1-11)
Satan Tempts Jesus
I mentioned Jesus being ‘driven’…but is misleading to think of Jesus being dragged along, as if He needed encouragement: no, the idea is that the Spirit and Jesus worked in tandem to relentlessly wreck havoc on the enemy. Indeed the inseparable bond of the two, and the Spirits hovering over Jesus during this event and His entire ministry is important to know. As Basil said ‘they were inseparable companions’. This was holy war against an exceedingly unholy foe. It seems foolish beyond belief that the devil would take Jesus on, but evil is irrational—meaning there is no understanding it.
It is reasonable to assume that Jesus had been the target of Satan from the beginning, and His entire life was spiritual warfare. Indeed, there is no way to adequately understand Jesus’ ministry without realizing that Jesus battled the evil one constantly, and that one of His main foci was to destroy Satan and his works.
It is noteworthy that in the Lukan account, this episode is preceded by a genealogy from Jesus to Adam. This inclusio suggests that the entire human history between Adam and Jesus, and that the temptation and victory of Jesus, are to be interpreted in contrast to Adam’s previous failure in his capacity as representative of human race. This is a re-run of Eden. Jesus is second/last Adam.
We see this in Romans 5. 18Therefore, as one trespass led to condemnation for all men, so one act of righteousnessg leads to justification and life for all men. 19For as by the one man’s disobedience the many were made sinners, so by the one man’s obedience the many will be made righteous. (Romans 5:18-19) As CS Lewis said, ‘Jesus danced Adam’s steps backwards’.
Contrast between 2 Adams:
Note contrast of location. Adam was in plush garden. Perfect environment; no lack of anything. But Jesus was in the midst of treeless, furnace-like wilderness, where all there is are vipers and scorpions. The location itself was foreboding and inhospitable for human habitation—epitome of fall.
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Adam was in company of his wife as helpmate vs Jesus as all alone. Loneliness…and remember that man being alone  received first malediction recorded—in garden before Eve created. Think of the torment people go through in solitary confinement, bereft of any human contact. I remember one of the old prisons that is a paranormal investigators hot spot was a place designed to keep people totally isolated—drove many insane. Maybe Transallegany..I can’t remember but I got involved indirectly…man’s phone caught on fire.
Adam lived in a gourmet restaurant with countless fruits to eat from, and his belly was content. But Jesus was on 40 day fast… literally starving. Unlike me, He did not live according to feelings, but set his face like flint in this prolonged battle. And the tense in Greek indicates that Jesus was being tempted continually. The last three are the culmination, and He is probably already worn out in every way.
Similarity—point of attack. Adam and Jesus’ temptation centered on the truthfulness, authority and trustworthiness of God’s Word.
To Eve Satan said: “has God said”? At first Satan was very subtle with Eve. “If God puts any restrictions on you, that means you are not free”. Then Satan outright contradicted God and called Him a liar, and said Adam and Eve would be as god. They trusted their senses, their own subjective intuition—became autonomous in their thinking. Adam was passive in his leadership/protection of the family. They gave the devil a foothold and he took full advantage and overwhelmed them with his superior intellect and insidious tempting. 1 Cor. 10:13 is for ‘front door’ temptations not when he’s already been let into your living room. Need to stop temptation in the bud.
It is obvious that Satan was an observer of Jesus’ baptism because he picks up on the very language the Father used to address Jesus– “IF you are the Son of God, command these stones…” And as we are told in Eph 6, Jesus picks up the Sword of the Spirit and quotes from Deuteronomy-man does not live bread alone…but by every Word… I will starve before I deny My Father’s truthfulness.”
First-Temptation
Frustrated Satan, picks up on the tactic and quotes scripture himself—using same word ‘gegrepetai’. And ironically, he quotes from the very psalm that folks in deliverance use all the time, Psalm 91. I’ve used many times in demon infested homes. But so does Satan, but out of context. And Jesus replies:” You obviously forgot the first rule of hermeneutics—don’t set one text of Word against another—compare scripture with scripture..” do not tempt God.” Tempting God means putting yourself in a situation in which it would take a miracle to extract you from it.
Then Satan has the mind boggling audacity to ask God almighty to bow down and worship him—promising the Creator all the kingdoms of the world. Forgetting they were already Jesus’…though Satan had limited authority given him by God. And this agitates Jesus and He informs the evil one that God alone is to be worshipped, and with that He tells Satan to get lost. It was over. He lost. Battle won! And the devil departs, until an opportune time.
Three times Jesus was tempted and each time He replied ‘gegrepetai’…the sense is that, though written in past, it has abiding authority. The Sword of the Spirit of Truth—the Holy Spirit works in and through His Word. We need to realize that while this was a power encounter, it was first a truth encounter, and then the power was unleashed. We need to have same hunger, same worship, same respect for God’s Word. Unlike Satan, we need to be willing to humble ourselves before God’s Word and embrace beliefs that, may seem to our pea brains to be irreconcilable—at least unable to explain how both can be true. For example, God’s sovereignty and human responsibility.
His whole life Jesus would be tempted off and on by Satan himself. Not a demon, but Satan himself, and I doubt any of us will ever face Satan himself in our lifetimes. His weakest demon is powerful enough to thrash me to shreds if not for God’s protection. I have seen the work of demons in person and I have seen the power of God in abolishing them through His Word and Jesus’ Name.
In applying this, often it is difficult in knowing if temptation emanates from indwelling sin or from outside, demonic source. But quoting scripture outloud can be of immense help in either situation. Sometimes we literally have to run. Last night on FB, I had a friend request and when I turned to it, it was hard core porn. That is something men need to run away from.
The devil hates the truth and so we can expect that he will do all he can to water truth down, and I am trying to expose folks to full counsel of God, rediscovered in the Reformation. It is sad that once what was so common then, and their successors the puritans, the doctrines of grace—are considered by many evangelicals to be aberrations.
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Martin Luther spoke often of how he was attacked by Satan himself—and I believe it because the precious gospel had been eclipsed in darkness in an anti-millennium from 500-1,500 AD. Is there no end to devil’s mimicry? Luther stood as single man against the church and Holy Roman Empire and was valiant for truth of gospel of grace alone.
This episode reminds us that God is passionate about sound theology and sound living…orthodoxy and orthopraxy.
In the end, angels came and ministered to Jesus—angels, who with the Holy Spirit, had been there the entire time. Praise God that Jesus did dance Adam’s steps backwards, and this was a prelude to the cross and the ultimate showdown…slaughter of Satan. And ultimately thrown into hell. Christus Victor—the Warrior King! Jesus Christ!  Amen.
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MORE DETAIL: For a wide range of Mark’s articles on these topics, please see: http://archive.aweber.com/paraworld Mark also writes a weekly article for the shared blog The Eye On The Paranormal: https://eyeontheparanormal.blogspot.c… Rev. Mark A. Hunnemann, Author, Deliverance Minister, Radio Guest and Former Pastor: Email – mhunne@aol.com.

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Many thanks for taking time to read or even share the above post. For similar posts and more about myself and friends, please see the below links! God bless you! Ivani Greppi.

LINKS FOR IVANI GREPPI:

Blog 
YouTube Channel
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 ‘… write the vision; make it clear.’ Habakkuk 2:2
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THE MIRACLE FAMILY: BY IVANA D. GIBBONS AND MICHAEL R. GIBBONS

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“The Miracle Family is a true and inspiring story of profound challenges and adversity confronting one family and how God sustained them throughout. Gabriella, the oldest child, was born fourteen weeks premature weighing one pound and ten ounces. Doctors gave her a fifty percent chance of survival and warned of brain bleeds and serious developmental impairments. Elijah, the youngest child, was diagnosed with a large tumor at 17 weeks gestation. By 22 weeks gestation, two medical specialists had suggested terminating the pregnancy due to rapid tumor growth. After being given a fifty percent chance of survival, Elijah was born at 34 weeks with a football-sized tumor. Eleven months after Elijah’s tumor was successfully removed, Ivana, a 37-year-old healthy mother of three young children, suffered a debilitating stroke. This book recounts the pain and heartache of medical challenges and describes the wondrous triumphs and victories wrought by faith. Ivana and Michael Gibbons have been happily married for nearly 18 years. They have three children who are real blessings in their lives: Gabriella, Rafaella, and Elijah. Ivana is a graduate of Florida Christian University who now is engaged full time as a homemaker. Michael is a graduate of the University of Notre Dame and the University of Miami School of Law. Michael is a partner at a large Orlando commercial law firm. Ivana and Michael are raising their three children in the City of Orlando, Florida. The idea for this book originated with Ivana and her desire to share with others near and far the true story of the medical challenges faced by our family and the powerful way God responded to our prayers. The authors pray that you will be as blessed reading this book as they have been writing it.”

Watch here: The Gibbons Family

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Elijah’s Story

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A Resource for Parents Confronting an SCT Diagnosis

By Michael R. Gibbons

“For You, O Lord, have delivered my soul from death,
my eyes from tears, my feet from stumbling,
that I may walk before the Lord in the land of the living.”
Psalm 116: 8-9

The day an expectant parent receives a diagnosis of SCT (sacrococcygeal teratoma) for their unborn or newly born child is a dark and painful moment in time. Frequently, as in our case, the occasion of the diagnosis is a much anticipated regularly scheduled ultrasound test to determine, among other things, the gender of the baby in utero. In other cases, the mother or baby in utero is showing some sign of distress or abnormality and an ultrasound is ordered to identify the cause of the distress or abnormality. In still other cases, the diagnosis is not made until the baby is actually delivered. In any event, parents are ill prepared to learn that the baby they already love and cherish is suffering from a rare (1 in 40,000) fetal tumor called a sacrococcygeal teratoma.

In our case (and I have subsequently learned in other cases), the critical moment of the initial diagnosis and announcement of the adverse news to the expectant parents is poorly handled by the attending physician (even high-risk specialists such as perinatologists). The occurrence of SCTs is sufficiently rare that even specialists are not always well informed and knowledgeable about the latest advances in the treatment of SCTs and the critical prognostic indicators (e.g. relative vascularity, composition and degree of internal component of the tumor). Perhaps as a result, the initial diagnosis is frequently (in the fetal SCT context) accompanied by a very pessimistic prognosis and a suggestion of termination of the pregnancy. In our case, the initial perinatologist painted a very bleak picture and failed to communicate the importance of the favorable prognostic signs evident with Elijah: the tumor was primarily external, not overly vascular and (at that time) had a significant cystic component.

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There is no disputing that SCTs diagnosed in utero are frequently fatal. Reliable statistics for such a rare condition are difficult to come by; the figure of 50% survival rate (for SCTs diagnosed in utero) is, however, seen frequently in the medical journals. What we found missing in our physician’s initial handling of the diagnosis was any sense of the possibility that the condition did NOT necessarily condemn our unborn child to a premature death or a life with significant impairments.

It is my sincere hope that this website will serve as a beacon of knowledge and support for parents struggling to cope with an SCT diagnosis. Personally, I found the experience very isolating and found myself struggling to find fellow travellers over this lonely, stressful and frightening road. About halfway through our 17 week journey, I did discover a wonderful oasis of knowledgeable support on the internet. There is an SCT support group on Yahoo that has approximately 45 members from all over the world. Most of the members are parents or grandparents of SCT babies. Some of the babies survived and others did not. Each of these members, however, has dealt with the many challenges and issues surrounding an SCT baby and each member is very supportive and helpful to parents struggling to cope with an SCT diagnosis. If you are the parent or grandparent (or other relative) of a baby diagnosed with SCT and would like to join the Yahoo Support Group, please email me at dad2elijah@yahoo.com.

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